A FOUR-year-old with a rare incurable muscular condition that confines him to a wheelchair will make it to the top of Mount Snowdon with the help of his proud mum.
Fraser Simmonds has Duchenne muscular dystrophy, a progressive disease eventually affecting all voluntary muscles, but mum Shelley Simmonds said she will do everything she can to give him the best life.
Inspired by a picture Fraser had drawn at nursery of a mountain, Shelley, from Billericay, has been training for the nine-mile trek with two and a half stone Fraser on her back, and will take on the feat with supportive friends Gemma Spicer and Jamie Moore on 3 June.
Shelley, 37, said: “Because he’ll never be able to achieve something physical like this, I just wanted to give him the experience of achieving that and knowing what that feels like to climb a mountain, so I’m going to be his legs when he goes up Snowdon.
“He can’t wait for it. He talks about how we’re going to climb it and he wants to put a flag up the top of the mountain together.”
And she added: “There’s a Peppa Pig episode where a couple of the characters climb a mountain and he thinks it’s going to be just like that.”
Shelley will be raising money for charity Harrison’s Fund, which goes towards research into a cure for this condition.
Her husband Geoff has already run several half marathons for Harrison’s Fund and together as a family Shelley estimates they have raised around £45,000 for the charity.
Duchenne affects around one in 3,500 boys and one in 50 million girls. Through their charity work, Shelley and her family have met many other families of children with the condition. Shelley said her trek up Snowdon was not only for Fraser, but to help researchers find a cure for all the other people suffering with Duchenne.
To donate to Shelley and Fraser’s Snowdon trek, visit https://www.justgiving.com/ fundraising/frasersimmonds